Written by Traci Brewer, executive director of the Down Syndrome Association of Central Kentucky (DSACK). UK HealthCare is proud to support DSACK and many other community organizations.
Today, March 21, is World Down Syndrome Day. Why? Because it’s 3/21, and people with Down syndrome have three copies of the 21st chromosome. That means they have 47 chromosomes instead of the typical 46, so we like to say they have a little something extra.
A lot has changed over the years for people with Down syndrome and for those who help care for them. As recently as the 1980s, individuals with Down syndrome had an average life expectancy of 25. Today, thanks to better medical treatments and screening, people with Down syndrome can live well into their 60s.
Education has also changed dramatically. As recently as the 1980s, families were told to institutionalize their loved ones with Down syndrome because they would never be able to read, write, talk, or contribute anything of value to their family or society. Today, right here in Kentucky, people with Down syndrome are attending college, working in meaningful jobs, driving, dating, volunteering in their communities and living productive, meaningful lives.
Organizations such as the Down Syndrome Association of Central Kentucky provide support for new families and empower self-advocates and their families by providing important information such as early math and literacy learning, financial planning, Individualized Education Plans consulting, career planning, and much more. One of our most exciting initiatives is We Work!, a multiphase program for students age 15 and older that teaches job skills, leadership skills, how to explore career opportunities and how to serve as peer mentors.
Recently someone said that DSACK has a great story to tell and many more chapters to be written. We still have more milestones to reach, more bridges to cross and many more chapters to write. You can learn more about us by visiting our website at www.dsack.org and by visiting our Facebook page, the Down Syndrome Association of Central Kentucky.
- UK Maternal-Fetal Medicine is here to help families facing high-risk pregnancies, giving mothers and their babies extra support throughout pregnancy and delivery. Learn more about high-risk pregnancy care at UK HealthCare.
- Learn more about the Kentucky Children’s Hospital, which provides more than 30 advanced sub-specialty programs in children’s health.